Table 1. Age of Caregiver
| Age |
Caregiver % |
| Less than 40 years |
1% |
| Between 40 to 49 years |
10% |
| Between 50 to 59 years |
29% |
| Between 60 to 64 years |
18% |
| Between 65 to 74 years |
19% |
| Greater than 75 years |
23% |
Table 2. Caregiver Race and Ethnicity
| Race/Ethnicity |
Caregiver % |
| White/Caucasian |
87% |
| Black or African Americans |
8% |
| American Indians/Alaskan Native |
2% |
| Asian American |
2% |
| Others (Mixed Race or Ethnicity) |
2% |
Table 3. Marital Status
| Status |
Caregiver % |
| Married |
66% |
| Widowed |
9% |
| Divorced or Separated |
16% |
| Never Married |
9% |
Table 4. Caregiver Education Level
| Education |
Caregiver % |
| Less than high school |
5% |
| High school |
25% |
| Some college, no degree |
29% |
| College graduate |
15% |
| Advanced or professional degree |
26% |
Table 5. Caregiver Household Income
| Income |
Caregiver % |
| $5,000 or less |
2% |
| $5,001-$10,000 |
4% |
| $10,001- $20,000 |
13% |
| $20,001-$30,000 |
20% |
| $30,001-$40,000 |
11% |
| $40,001-$50,000 |
15% |
| $50,001-$75,000 |
14% |
| Over $75,000 |
21% |
Table 6. Age of Care Receiver
| Age |
Care Receiver % |
| Less than 65 years |
4% |
| Between 65 to 74 years |
11% |
| Between 75 to 84 years |
42% |
| 85 years or older |
43% |
Table 7. Care Receiver's Health Conditions
| Conditions |
Care Receiver % |
| Alzheimer's disease or other dementia |
75% |
| High blood pressure |
73% |
| Eye or vision problems |
72% |
| Arthritis |
70% |
| Depression or anxiety |
64% |
| High cholesterol |
64% |
| Hearing problems |
57% |
| Heart disease |
54% |
| Osteoporosis |
47% |
| Breathing or lung problems |
38% |
| Stroke |
33% |
| Diabetes |
33% |
| Cancer |
32% |
| Anemia |
31% |
| Kidney disease |
16% |
| None |
6% |
Table 8. Care Receiver's Functional Status
| Needing assistance in activities of daily life |
Always or
Very Often*
(% Reporting) |
Sometimes*
(% Reporting) |
Rare or Never
(% Reporting) |
| Taking a bath or shower |
65% |
10% |
25% |
| Dressing |
50% |
18% |
32% |
| Walking |
48% |
26% |
26% |
| Using the toilet |
40% |
16% |
44% |
| Getting in or out of a bed or chair |
39% |
24% |
37% |
| Getting around inside the home |
37% |
24% |
39% |
| Eating |
28% |
17% |
55% |
*The combined percentage of these two columns equal to the total percentage of care receivers
needing assistance for the specific functional limitation.
Table 9. Caregiver's Relationship with
Care Receiver
| Relationship to Care Receiver |
All Caregivers % |
| Daughter |
48% |
| Wife |
23% |
| Son |
10% |
| Husband |
10% |
| Other Relative (niece, nephew, and grandchildren) |
5% |
| Brother or Sister |
2% |
| Friends or Neighbors |
2% |
| Domestic partner |
1% |
Table 10. Living Arrangements
| Living Status |
Caregiver % |
| Co-reside with their care receivers |
54% |
| Care receivers live alone |
24% |
| Other living arrangements |
22% |
Table 11. Role of Caregivers
| Care Provided to Care Receiver |
Caregiver % |
| All or nearly all care provided for care receiver |
75% |
| Provide about half the care provided for care receiver |
9% |
| Less than half the care provided for care receiver |
16% |
Table 12. Years Spent on Caregiving
| Duration of Caregiving |
Caregiver % |
| Less than 1 to 4 years |
50% |
| 5 to 9 years |
30% |
| 10 to 19 years |
14% |
| Greater than 20 years |
5% |
Table 13. Time Spent Caregiving
| Amount of Hours per Week |
Caregiver % |
| Less than 10 hours |
17% |
| 10 to 39 hours |
33% |
| 40 to 79 hours |
15% |
| 80 to 99 hours |
6% |
| More than 100 hours |
29% |
Table 14. Types of Help Provided to Care Receiver
| Type of help provided to care receivers |
Always or Very Often*
% Reporting |
Sometimes*
% Reporting |
Rare or Never
% Reporting |
| Going shopping or to the doctor's office |
89% |
7% |
4% |
| keeping track of bills, checks or other financial matters |
85% |
6% |
9% |
| Arranging for care or services |
81% |
5% |
13% |
| Arranging for home repair or home modifications |
75% |
7% |
18% |
| Preparing meals, doing laundry, and cleaning the house |
74% |
12% |
14% |
| Medical needs (taking medicine or changing bandages) |
68% |
11% |
21% |
| Performing home repair or home modifications |
66% |
11% |
23% |
| Paying for care |
57% |
11% |
32% |
| Personal care (dressing, eating, bathing, or getting to the bathroom) |
52% |
16% |
32% |
* The combined percentage of these two columns equal to the total percentage of caregivers providing the specific type of care to care receivers.
Table 15. Care Load
| Care Load |
Caregiver % |
| Care Receivers cannot be left alone |
36% |
| Care Receivers can be left alone for short periods of time and/ need to be check
several times a day |
42% |
| Can be left alone |
21% |
Table 16. Caregiving Rewards
| Caregiving Rewards |
Always or Very Often*
% Reporting |
Sometimes*
% Reporting |
Rare or Never
% Reporting |
| Helping care-receiver |
88% |
11% |
1% |
| Helping family |
78% |
12% |
10% |
| Sense of satisfaction |
69% |
23% |
8% |
| Being appreciated |
62% |
25% |
13% |
| Sense of accomplishment |
56% |
34% |
10% |
| Companionship |
34% |
33% |
33% |
* The combined percentage of these two columns equal to the total percentage of caregivers reported having the specific type of caregiving rewards.
Table 17. Caregiving Burdens
| Caregiving Burdens |
Always or Very Often*
% Reporting |
Sometimes*
% Reporting |
Rare or Never
% Reporting |
Causes emotional strain |
60% |
30% |
10% |
| Not enough time for self |
56% |
30% |
14% |
| Cause physical stress |
49% |
28% |
23% |
| Conflicts with social life |
47% |
27% |
26% |
| Not enough time for family |
43% |
29% |
28% |
| Affecting health |
33% |
41% |
26% |
| Interferes with work |
28% |
31% |
41% |
| Financial burden |
26% |
27% |
47% |
* The combined percentage of these two columns equal to the total percentage of caregivers reported having the specific type of caregiving burdens.
Table 18. Sources of Information on Family Caregiver Programs
| Source |
Caregiver % |
| Family and Friends |
22% |
| NYSOFA and/ or AAA |
19% |
| Case manager or a social worker |
14% |
| Physician or hospital |
10% |
| Community organizations |
10% |
| Media, e.g., TV, radio, newspaper, etc. |
9%< |
| Others |
16% |
Table 19. Caregiver Services Utilization
| Services |
Caregiver % |
| Information and Assistance |
72% |
| Respite care |
47% |
| Caregiver counseling, training or education |
43% |
| Supplemental services |
37% |
Table 20. Most Helpful Caregiver Services
| Caregiver Services |
Caregiver % |
| Information and assistance |
42% |
| Caregiver counseling ,training, or education |
25% |
| Respite Care |
21% |
| Supplemental Services |
\
12% |
Table 21. Overall Quality of Caregiver Services
| Rating |
Caregiver % |
| Very good to Excellent |
63% |
| Good |
24% |
| Poor to Fair |
14% |
Table 22. Care Receivers: Service Utilization
| Services |
Care Receiver % |
| Information and Referral |
44% |
| Home Care |
40% |
| Case management |
31% |
| Home delivered meals |
23% |
| Adult day care |
19% |
| Transportation |
21% |
Table 23. Overall Quality of Care Receiver Services
| Rating |
Caregiver % |
| Very good to Excellent |
64% |
| Good |
27% |
| Poor to Fair |
12% |
Table 24. Services Benefits
| Services |
Yes % |
Sometimes %
|
| Resulted in benefit to care receiver |
73% |
15% |
| Enable to provide care longer |
59% |
22% |
| More confident about caregiving |
56% |
23% |
| Better understanding about how to get services |
52% |
26% |
| Improved knowledge about care receiver's illness |
50% |
18% |
| Less stress |
37% |
34% |
| More personal time |
29% |
36% |
| Receive other benefits (e.g., SSI, discount phone service, VA benefit) |
25% |
2% |
Table 25. Service Outcomes
| Outcomes Without Caregiver or Care Receiver Services |
Caregiver % |
| Care Receiver would live in a nursing home |
26% |
| Care Receiver would live in an assisted living facility |
12% |
| Care Receiver would move in with caregiver |
6% |
| Care Receiver might have died without services |
4% |
| Care Receiver would live with another family member or friend |
2% |
| Care Receiver might be in hospital/rehab center/or have around the clock help. |
2% |
Table 26. Additional Help that Would Be
Valuable to Caregivers
| Additional or New Help Needed |
Caregiver % |
| Give tax credits or tax break |
71% |
| Respite care |
63% |
| Help with financial assistance to pay for services |
61% |
| Help with housekeeping |
60% |
| Help with transportation |
56% |
| Help with personal care |
52% |
| Help with adult day services |
53% |
| Help with making meals |
46% |
| Help with getting family involved |
45% |
| Help with shopping |
40% |
| Help with medicine |
40% |
| Help with money management |
32% |
| None |
31% |
Table 27. Other Information that Would Be Valuable to Caregivers
Additional or New Help
Needed |
Caregiver % |
| Help in dealing with agencies |
88% |
| Information about changes in laws |
87% |
| A Helpline |
85% |
| Help in understanding how to pay for nursing homes |
78% |
| Information about counseling services |
73% |
| Help in understanding how to select a nursing home |
71% |
| Information how to care for disabilities |
69% |
| Information about health/LTC insurance |
64% |
| Information about housing |
52% |
| Other information |
27% |
| None |
35% |
Table 28. How Services Could Be Improved
Additional or New Help
Needed
| Caregiver %
|
| Increase the amount of services |
79% |
| Less complicated |
78% |
| More timely |
73% |
| More consistent |
63% |
| Easier to access |
62% |
| More reliable |
53% |
| More competent |
49% |
| More personable |
43% |
| More culturally diverse |
30% |
| Other |
7% |
