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Table 1. Age of Caregiver
Age Caregiver %
Less than 40 years 1%
Between 40 to 49 years 10%
Between 50 to 59 years 29%
Between 60 to 64 years 18%
Between 65 to 74 years 19%
Greater than 75 years 23%


 
Table 2.  Caregiver Race and Ethnicity
Race/Ethnicity Caregiver %
White/Caucasian 87%
Black or African Americans 8%
American Indians/Alaskan Native 2%
Asian American 2%
Others (Mixed Race or Ethnicity) 2%


 
Table 3. Marital Status
Status Caregiver %
Married 66%
Widowed 9%
Divorced or Separated 16%
Never Married 9%


 
Table 4.  Caregiver Education Level
Education Caregiver %
Less than high school 5%
High school 25%
Some college, no degree 29%
College graduate 15%
Advanced or professional degree 26%


 
Table 5.  Caregiver Household Income
Income Caregiver %
$5,000 or less 2%
$5,001-$10,000 4%
$10,001- $20,000 13%
$20,001-$30,000 20%
$30,001-$40,000 11%
$40,001-$50,000 15%
$50,001-$75,000 14%
Over $75,000 21%


 
Table 6.  Age of Care Receiver
Age Care Receiver %
Less than 65 years 4%
Between 65 to 74 years 11%
Between 75 to 84 years 42%
85 years or older 43%


 
Table 7.  Care Receiver's Health Conditions
Conditions Care Receiver %
Alzheimer's disease or other dementia 75%
High blood pressure 73%
Eye or vision problems 72%
Arthritis 70%
Depression or anxiety 64%
High cholesterol 64%
Hearing problems 57%
Heart disease 54%
Osteoporosis 47%
Breathing or lung problems 38%
Stroke 33%
Diabetes 33%
Cancer 32%
Anemia 31%
Kidney disease 16%
None 6%


 
Table 8. Care Receiver's Functional Status
Needing assistance in activities of daily life Always or
Very Often*
(% Reporting)
Sometimes*
(% Reporting)
Rare or Never
(% Reporting)
Taking a bath or shower 65% 10% 25%
Dressing 50% 18% 32%
Walking 48% 26% 26%
Using the toilet 40% 16% 44%
Getting in or out of a bed or chair 39% 24% 37%
Getting around inside the home 37% 24% 39%
Eating 28% 17% 55%

*The combined percentage of these two columns equal to the total percentage of care receivers needing assistance for the specific functional limitation.



 
Table 9. Caregiver's Relationship with Care Receiver
Relationship to Care Receiver All Caregivers %
Daughter 48%
Wife 23%
Son 10%
Husband 10%
Other Relative (niece, nephew, and grandchildren) 5%
Brother or Sister 2%
Friends or Neighbors 2%
Domestic partner 1%


 
Table 10. Living Arrangements
Living Status Caregiver %
Co-reside with their care receivers 54%
Care receivers live alone 24%
Other living arrangements 22%


 
Table 11. Role of Caregivers
Care Provided to Care Receiver Caregiver %
All or nearly all care provided for care receiver 75%
Provide about half the care provided for care receiver 9%
Less than half the care provided for care receiver 16%


 
Table 12. Years Spent on Caregiving
Duration of Caregiving Caregiver %
Less than 1 to 4 years 50%
5 to 9 years 30%
10 to 19 years 14%
Greater than 20 years 5%


 
Table 13. Time Spent Caregiving
Amount of Hours per Week Caregiver %
Less than 10 hours 17%
10 to 39 hours 33%
40 to 79 hours 15%
80 to 99 hours 6%
More than 100 hours 29%


 
Table 14. Types of Help Provided to Care Receiver
Type of help provided to care receivers Always or Very Often*
% Reporting
Sometimes*
% Reporting
Rare or Never
% Reporting
Going shopping or to the doctor's office 89% 7% 4%
keeping track of bills, checks or other financial matters 85% 6% 9%
Arranging for care or services 81% 5% 13%
Arranging for home repair or home modifications 75% 7% 18%
Preparing meals, doing laundry, and cleaning the house 74% 12% 14%
Medical needs (taking medicine or changing bandages) 68% 11% 21%
Performing home repair or home modifications 66% 11% 23%
Paying for care 57% 11% 32%
Personal care (dressing, eating, bathing, or getting to the bathroom) 52% 16% 32%

* The combined percentage of these two columns equal to the total percentage of caregivers providing the specific type of care to care receivers.



 
Table 15. Care Load
Care Load Caregiver %
Care Receivers cannot be left alone 36%
Care Receivers can be left alone for short periods of time and/ need to be check several times a day 42%
Can be left alone 21%


 
Table 16. Caregiving Rewards
Caregiving Rewards Always or Very Often*
% Reporting
Sometimes*
% Reporting
Rare or Never
% Reporting
Helping care-receiver 88% 11% 1%
Helping family 78% 12% 10%
Sense of satisfaction 69% 23% 8%
Being appreciated 62% 25% 13%
Sense of accomplishment 56% 34% 10%
Companionship 34% 33% 33%

* The combined percentage of these two columns equal to the total percentage of caregivers reported having the specific type of caregiving rewards.



 
Table 17. Caregiving Burdens
Caregiving Burdens Always or Very Often*
% Reporting
Sometimes*
% Reporting
Rare or Never
% Reporting

Causes emotional strain

60% 30% 10%
Not enough time for self 56% 30% 14%
Cause physical stress 49% 28% 23%
Conflicts with social life 47% 27% 26%
Not enough time for family 43% 29% 28%
Affecting health 33%

41%

26%
Interferes with work 28% 31% 41%
Financial burden 26% 27% 47%

* The combined percentage of these two columns equal to the total percentage of caregivers reported having the specific type of caregiving burdens.



 
Table 18. Sources of Information on Family Caregiver Programs
Source Caregiver %
Family and Friends 22%
NYSOFA and/ or AAA 19%
Case manager or a social worker 14%
Physician or hospital 10%
Community organizations 10%
Media, e.g., TV, radio, newspaper, etc. 9%<
Others 16%


 
Table 19. Caregiver Services Utilization
Services Caregiver %
Information and Assistance 72%
Respite care 47%
Caregiver counseling, training or education 43%
Supplemental services 37%


  \
Table 20. Most Helpful Caregiver Services
Caregiver Services Caregiver %
Information and assistance 42%
Caregiver counseling ,training, or education 25%
Respite Care 21%
Supplemental Services12%


 
Table 21. Overall Quality of Caregiver Services
Rating Caregiver %
Very good to Excellent 63%
Good 24%
Poor to Fair 14%


 
Table 22. Care Receivers: Service Utilization
Services Care Receiver %
Information and Referral 44%
Home Care 40%
Case management 31%
Home delivered meals 23%
Adult day care 19%
Transportation 21%


 
Table 23. Overall Quality of Care Receiver Services
Rating Caregiver %
Very good to Excellent 64%
Good 27%
Poor to Fair 12%


 
Table 24. Services Benefits
Services Yes % Sometimes %
Resulted in benefit to care receiver 73% 15%
Enable to provide care longer 59% 22%
More confident about caregiving 56% 23%
Better understanding about how to get services 52% 26%
Improved knowledge about care receiver's illness 50% 18%
Less stress 37% 34%
More personal time 29% 36%
Receive other benefits (e.g., SSI, discount phone service, VA benefit) 25% 2%


 
Table 25. Service Outcomes
Outcomes Without Caregiver or Care Receiver Services Caregiver %
Care Receiver would live in a nursing home 26%
Care Receiver would live in an assisted living facility 12%
Care Receiver would move in with caregiver 6%
Care Receiver might have died without services 4%
Care Receiver would live with another family member or friend 2%
Care Receiver might be in hospital/rehab center/or have around the clock help. 2%


 
Table 26. Additional Help that Would Be Valuable to Caregivers
Additional or New Help Needed Caregiver %
Give tax credits or tax break 71%
Respite care 63%
Help with financial assistance to pay for services 61%
Help with housekeeping 60%
Help with transportation 56%
Help with personal care 52%
Help with adult day services 53%
Help with making meals 46%
Help with getting family involved 45%
Help with shopping 40%
Help with medicine 40%
Help with money management 32%
None 31%


 
Table 27. Other Information that Would Be Valuable to Caregivers
Additional or New Help
Needed
Caregiver %
Help in dealing with agencies 88%
Information about changes in laws 87%
A Helpline 85%
Help in understanding how to pay for nursing homes 78%
Information about counseling services 73%
Help in understanding how to select a nursing home 71%
Information how to care for disabilities 69%
Information about health/LTC insurance 64%
Information about housing 52%
Other information 27%
None 35%


 
Table 28. How Services Could Be Improved
Additional or New Help
Needed
Caregiver %
Increase the amount of services 79%
Less complicated 78%
More timely 73%
More consistent 63%
Easier to access 62%
More reliable 53%
More competent 49%
More personable 43%
More culturally diverse 30%
Other 7%